 |
|||||||||||||
|
|
|||||||||||||
|
 Diet and supplements LORENZOS OIL Upon diagnosis we were told that the only 'treatment' we could give was 51ml per day of Lorenzo's oil, and also to put Jacob on a very low fat diet (less than 3% fat, roughly 30g of fat per day). This was supplemented with a complete multivitamin. However, this treatment is normally only successful in treating pre-symptomatic boys. The daily drinking of the Lorenzo's oil was a very stressful experience! Jacob hated drinking it. We tried mixing it with every juice/drink we could think of but it didn't mix well if at all with anything except mango juice. Despite Jacobs hatred of the oil, he took it every day! imagine drinking pure glupy oil every day! not nice! A few days before xmas it was decided that Lorenzo's oil was having no effect on Jacob's ALD and we should stop. No ill effects were noticed after stopping and no more Lorenzo's oil stresses on Xmas day! If you want to know more about the oil and the myelin sheath....the fatty sheath surrounding the nerves in the brain please visit: www.myelin.org/lorenzosoil. DIET We were told to put Jacob on a very low fat diet of less than 3% fat which we did... straight away... we removed as much processed food as possible from Jacob's diet and started making meals with organic foods. We strongly believe that processed food causes problems for many people and Jacob needed to be detoxed thoroughly. Jacob rapidly lost weight and so when we stopped the Lorenzo's oil we also decided to introduce a little more fat into the diet. On an average day Jacob will have around 20g of fat, and looks much healthier for it. The fats in the foods we eat don't agree with kids with ALD... so although we were told 30g each day we decided to reduce to 20g.. if the fat isn't good try and limit as much as possible. Jacob was always quite overweight anyway and losing the weight has been very beneficial for Jacob and he loves his new looks!!  USANA CHILDREN'S VITAMINS With children's lifestyles and growing bodies, it's crucial for them to receive adequate vitamins, minerals, and antioxidants. Usanimals provide a full array of these nutrients in amounts designed specifically for children. Usanimals include large doses of vitamins C and E, two of the most powerful antioxidants needed by kids today. Usanimals also contain an antioxidant phytonutrient blend of blackberry, cranberry, raspberry, and wild blueberry fruit powders. Children love the natural Wild Berry Blend flavour and animal shapes that are small and easy to eat. (And adults love them because USANA use only natural flavours.) Click here to view their pdf EQUAZEN EYE Q A few months before diagnosis we felt Jacob may have some sort of behavioral problems. After researching how to help the brain function we came across Eye Q by Equazen. Eye Q contains a blend of essential fatty acids, Omega 3 and Omega 6 as well as EPA, DHA. All essential for the brain in general, as well as Omega 3 and 6 being involved in the myelin repair. The Equazen website is a mine of information and has results of trials etc... it is worth taking a look www.equazen.co.uk - it also explains how these can benefit the function of the brain. Equazen recommend a dose of 6 capsules a day for 3 months and then 2 capsules a day after that. When we reduced the dosage from 6 to 2 we noticed a quick deterioration in Jacob. We increased the dose back to 6 and Jacob stabilized again... what was also unbelieveable... David, Jacobs healer, within 2 days of reducing his dose, while healing David picked up that Jacob had started to lack Omega 3 and 6!! WHEATGRASS Each day all of the family take 30ml of frozen wheatgrass juice. This sweet dark green juice contains chlorophyll, natural enzymes and is very high in vitamins and minerals. It helps detox the body and helps to maintain a healthy immune system. Since taking wheatgrass we have all noticed a reduction in illnesses like coughs/colds etc. As everyone who has school aged kids knows, these are hard to avoid. We get our supply of wheatgrass from Brian at wheatgrass world www.wheatgrassworld.co.uk who grows it locally. His website is well worth a visit for more info on this amazing juice! ORGANIC SOYA LECITHIN We got in touch with Stephen Langley who is a naturopath at the Hale Clinic in London www.haleclinic.com He also writes a column for spirit and destiny magazine. www.spiritanddestiny.co.uk He recommended we try Soya Lecithin to complement the work that the Eye Q capsules were doing. Lecithin occurs naturally in humans. It protects cells from oxidation and is very important in the structure of the myelin sheath!! it also helps with the breakdown of fats within the body... perfect for ALD! Many foods today lose the lecithin when they are processed. Jacob takes 3 teaspoons a day... he has it in yoghurts but you can sprinkle it on cereal etc. They come as granules... the granules are better than the pill form as they are more concentrated. We use a non GM brand Lecigran. www.laneshealth.com DOSAGE SUMMARY Usana Childrens Vitamins - 2 tablets per day Frozen Wheatgrass - 30ml per day Equazen Eye Q - 6 per day Lecithin granules - 3 teaspoons per day Back to top |
||||||||||||
